Madden entered this world crying and screaming; his sounds were miraculous and truly a blessing to his parent's ears. I met Madden's mom, Mandy, through social networking and we frequently exchange many messages each week. I share updates on Madden with my husband like he's another miracle baby that lives just down the road. In fact, Madden lives in Florida and I've only met him through the lens of his sweet mom's camera.
That doesn't keep me from feeling united with them. Having a diagnosis of Jeune Syndrome is scary. The unknowns and the fears that come along with uncertainty is challenging. Madden has also been battling severe reflux and has had a few health scares lately that are now requiring him to be transferred to Children's Hospital of Philadelphia (CHOP). The transfer to CHOP is good news because there are doctors there that have actually seen Jeuene's kids before and having some familiarity with it is critical to nailing down a comprehensive plan of care for Madden. The downside of this is the expensive travel costs and time away from the rest of the family.
Like our family, the Sheridan family has been blessed with an amazing support network. They are forever grateful for all the prayers that went up for Madden before he entered this world and they are in need of continued prayers as Madden's journey continues. Also, the costs of having a child with special needs is extraordinary. Many have asked how they can help support the Sheridan's and ensure Madden gets the care he needs. A fund has been set up to donate to the Sheridan family to help cover medical expenses and travel costs associated with trips to Philadelphia. If you find it in your heart to contribute, you may do so by clicking the image below. Prayers and well wishes continue to be needed as well.