Will had his MRI and CT Scans today under anesthesia. We were nervous about this for many reasons but particularly more so because he has a cold and he had some rapid breathing and vomiting late yesterday after his PFT.
I'm pretty sure the anesthesiologist thought we were crazy for being so concerned. He called the pulmonologist and he also sounded like he thought we were nutty because Will was only "acutely" ill. Soooo, I said yes to the tests while Carlton kind of felt iffy about it. He ended up agreeing and we kissed our boy goodbye.
Will did great during the test and was extubated and breathing on his own like a champ. We were admitted to the hospital as an extra precaution because of all out concerns. Late this afternoon, there was talk of discharging us because Will was doing so well. THEN, I noticed he felt warm. We kind of shrugged it off for a bit and then I felt more urgent about it. When we took his temp, it was 101.6. Enough to warrant Tylenol and some tears from me.
I'm not worried about a fever. I'm worried about what's causing the fever. I'm worried this is the tip of the iceberg. The thing that keeps us here. The thing that makes the VEPTR something we have to do now. I'm scared. I'm stinky. I need deodorant. You know, big things. Life changing things.
I'm praying. Praying that it's just a weird, random fever. A poorly timed fever designed to remind me just how special our boy is. He's sleeping now. The Tylenol is working. I hear him stir. I hear the gentle, rhythmic breathing I craved to hear just a few months ago when I was pregnant with him. I am reminded that God'a hand is always at work. Providing hope in the moments when you feel so alone. So scared. God is good and I know he'll help guide us through this bump in the road.
Tonight I pray for Will. I pray for his fever to go down and for whatever is bothering him to get better. I pray for his chest to grow. I also pray for Madden, sleeping just one floor down. I pray for Aubree, just sleeping a few doors down. I pray for Lauren, sleeping in Texas. I pray for all of us parents to feel the hope, strength and peace that only God can give us.
Here's hoping for a fever free and good day tomorrow.