CHOP: Day 4

Yesterday was our fourth and final day of official appointments for this visit. Unfortunately, our final visits ended up being inpatient since Will spiked a fever after his MRI and CT scans. I will just skip right to the big takeaway though!

Will has not been recommended for the VEPTR surgery at this time. We are very encouraged by this and it is such a huge testament to the power of prayer. Will does have restricted function in his lungs because of his small chest but he is able to "compensate" for this right now. The concern going forward as he continues to grow is that his chest won't be able to keep up and his oxygen needs will be greater than what his lungs are able to provide. BUT, he's doing okay now and we get to take him home (today!!!) and get back to life as normal until we come back for our next set of appointments in late July.

We will repeat some of the tests in late July and see how his lung function has changed. If it's the same or better relative to his size, we will likely get another pass on the surgery. If his function is going down, then surgery will be imminent if we agree to it.

Soooooo, today we are thankful. Praise be to God for continuing to allow Will to do so well. We remain prayerful over the coming months that Will's chest will grow and that his lung function improves.

And with that, we are out of here!!! Thank you for all of your support and encouragement. We truly couldn't do this and remain sane if it weren't for each and every one of you.