All About Will and Our Miracle Journey

In September 2011, we found out that we were expecting our second child.  We were beyond happy to be adding to our family and began anxiously awaiting all the scheduled doctors visits to check on our new little baby's growth and then eventually to find out whether we would be having a boy or girl.

Unfortunately nine days into the pregnancy, we started having some issues.  All of them were related to how the placenta and uterus were handling things and the doctors told us that we would have a precarious road ahead.  Issues persisted into October and on two different occasions we thought we had lost our precious baby.  This little one was a fighter, though, and with every scare our little baby gave us the opposite reaction of pure joy when we realized the baby was still alive and growing.  Thank God.

In early December, it was finally time for us to have the chance to find out whether we were going to be blessed with a son or a daughter.  We went in for our eighteen week anatomy scan and soon learned that a little boy would be joining our world.  Thoughts of watching Carlton and his little boy fishing soon popped into my head and we proudly told Emme she would be a big sister to a new little brother.  Unfortunately, all of our joy and excitement was soon changed to worry and fear.  The sonographer noticed that our little boy had some skeletal issues and we were quickly referred to high risk doctors.

Throughout the following weeks and months, our little boy was given a likely diagnosis of a fatal skeletal dysplasia, most likely Osteogenesis Imperfecta which is a brittle bone disease.  We went in to Will's birth full of fear.  Doctors had told us that we may only have minutes with him before he died.

On May 2, 2012, our precious son, William, was born.  As doctors pulled him from my body, we heard a miraculous sound; Will was crying!  He was breathing on his own and scored an amazing nine on his Apgar score.  The medical team huddled around him anxiously awaiting any signs of distress.  Soon enough, we would learn that Will did not have Osteogenesis Imperfecta.  Doctors performed whole genome sequencing and we learned that Will had an even more rare syndrome called Jeune Syndrome.

We were prepared for the worst case scenario with Will; death soon after being born.  He is now over eight months old and doing very well.  We don't know what the future holds for our precious son, but we have placed him firmly in the hands of God.  He's our little miracle.  You can watch a short video about our miracle journey below or you can click this link and listen to a brief talk I gave about our journey and how it has changed our lives forever.

You can also read all of our previous posts about the pregnancy and progress with Will by following this link to access all the posts that have been tagged, "baby boy".  Posts will appear with the most recent first.

The Birth of a Miracle from The Tall Chick on Vimeo.

When viewing the video, be sure you click on the four little arrows to the left of the the vimeo logo  so you can expand the video to fit your full screen.  It will help you read the text fully!